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HOME | HNPCC Self Help Group
遺傳性（非瘜肉）結直腸癌綜合症互助小組
HNPCC Self Help Group allows people and families affected by HNPCC to share their experiences, and support each other.
Hereditary Non-Polyposis Colorectal Cancer Syndrome (HNPCC) is an autosomal dominant hereditary condition. Once the disease has been identified, great psychological burden is faced by the patient and his/her family. Apart from professional support to guide, educate and counsel affected families, mutual support among affected individuals is also an effective way to facilitate adjustment to the condition. The idea behind establishing the HNPCC Self-Help Group to provide such a channel for the patient and his/her family to meet, to share their experience with each other and to show their mutual support during their fight with this disease.
The HNPCC Self-Help Group was set up with the following aims :
1. To provide an opportunity for the members to know each other, express their feelings, share their experiences, and support each other;
2. To facilitate education and counselling of the members;
3. To maintain contact and communication with the members;
4. To provide a comfortable and relaxing environment for the members to ask questions freely.
The HNPCC Self-Help Group was established since November 1998. Still at its early stage of development, meetings are held at 3 to 6 monthly intervals. Meetings are mainly in the form of educational talks and small group discussion and sharing. For the time being, the Registry is still playing a leading role in running this group. We hope that, with continuous encouragement and guidance, this group will becoming self-governing in the near future.
Pleae contact us for more information about the HNPCC Self Help Group, our email address is mschan1@hkucc.hku.hk
遺傳性（非瘜肉）結直腸癌綜合症互助小組 希望透過受綜合症影響的家庭成員的經驗分享以達致互相鼓勵及互相支持。
遺傳性（非瘜肉）結直腸癌 是一種顯性的常染色體遺傳病。病症一經證實，病人及其家人都會背負著沉重的心理負擔。除了以專業的協助來引導、教育及輔導受影響的家庭之外，受影響人士的互相支持也是有效的方法去幫助患者適應情況。成立互助小組背後的目的是希望透過這個渠道，讓病人見面、分享經驗和一起互相支持對抗疾病。
成立綜合症互助小組主要目的如下：
1. 給予成員一個認識對方、抒發內心感受、分享經驗、互相鼓勵的機會
2. 方便向成員作輔導及教育
3. 與成員保持聯絡和溝通
4. 提供一個舒適輕鬆的環境好讓成員自由發問
綜合症互助小組於1998年11月成立。這仍在發展的互助小組每隔三至六個月聚會一次。聚會的形式主要包括教育講座、小組討論及經驗交流。直至目前為止，資料庫仍擔當領導小組的運作。我們希望不久的將來，在資料庫不斷的鼓勵和引導下，小組可以獨自管理及運作。
如欲多了解遺傳性（非瘜肉）結腸癌綜合症互助小組的資料，請與我們聯絡。
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